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Facebook Support Group

A group that supports people who are affected with CRMO. People can ask questions, and seek support from other people who are dealing with this disease.

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Melodic Caring Project

Melodic Caring Project

A great organization that streams LIVE concerts to hospital rooms or homes of patients who are struggling with serious diseases. Personal shout outs to the patients during the concert by these artists, as well as a live chat feature from the organizers, makes for a very personal and very uplifting experience for the patients. For patients who have ben through so much, this organization knows how to lift burdens and replace them with joy and love! This unique service is free to the patient and free to the hospital.

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Kailas-Komforts

Kaila's Komfort, Inc.

Kaila’s Komfort is a 501(c)(3) non-profit organization that was created to provide comfort to children and adults diagnosed with CRMO, to bring awareness, and to support families affected by this disease. They ship care packages around the world (at no cost) to kids and adults with CRMO and their families.

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arthritis foundation

Arthritis Foundation

The Arthritis Foundation is a website dedicated to providing the latest information on this disease.

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camp

Camps

Camps are a great place for kids to meet other kids who have a similar diagnose. They make friendships that can last a lifetime.

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autoinflammatory

Autoinflammatory Alliance

The Autoinflammatory Alliance is dedicated to providing information on autoinflammatory diseases.

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